A re-blog! Why? When I read this post on Cognitive dysfunction, I felt so relieved. It perfectly describes some of my struggles that come with ME and it’s companions. And no matter how hard I try, all attempts to describe this to friends, family and others, fail. But here it is, perfectly explained. I want to share this with you, with my friends and family, with all others who try to explain but don’t know how and with those who can’t begin to imagine what it’s like. I want to share my views on happiness and daily life with you, but sometimes also my daily struggles…because that’s also who I am and I’d like you to understand a little. xt
I travel. I don’t go to India or Peru. But I travel. And so far I’ve come a long way.
Every day I come a long way. Some days the roads I travel were not made for travelling. But I travel anyway.
We need to talk about ME. About why most things I do, I do “on character”. My head tells me to cook. Eat. Get up. My body tells me I can’t. My legs tell me to give in and collapse. Sometimes my body doesn’t tell me. No cues, no notice. Instead it simply does.
But I just want to be. Young. Healthy. Living my life. Strong.
So I keep trying.
Trying when everything feels like shutting down and giving up.
Sometimes it gets the better of me. And even though I want to, there’s nothing I can do.
This is why sometimes I can’t write. Why sometimes posts won’t be regular, daily, always happy. This is about why even a trip to the supermarket sometimes takes hours, if not days, to recover. And why all the fruit and sleep in the world won’t fix it.
Nothing I can do about it. Other than giving in. Accepting. Trying to charge the battery. Dealing with and dividing my little energy.
The day I got the diagnose I found my personal manual. I found ME.
This is about Myalgic Encephalomyelitis.
And from here I can continue my journey.